Development of a Web-based Caregiver Toolkit for Down Syndrome

Importance of the Research Problem: Digital health is a vital component of the progress of healthcare and efficiency of healthcare delivery in the present era. The Oman Vision 2040 highlights the need for technology-driven healthcare services that may be easily accessed to ensure sustainable wellbeing. The Ministry of Health Research Priorities highlights the requirement for need-based action research in the field of Congenital anomalies and Genetic disorders that includes technology-based interventions for treatment and management

Objectives

1.      1. To assess the developmental needs of children with Down Syndrome.

2.      2. To conduct a needs analysis relating to parenting and associated skills training for caregivers of children with Down Syndrome.

3.      3. To explore the psychosocial burden of caregivers of children with Down Syndrome.

4.      4. To develop a web-based prototype for caregivers that provides guidance on techniques for home-based developmental skills training and behavior modification for children with Down Syndrome.

5.      5.To design the prototype to include web-based support for the psychosocial burden experienced by caregivers.

 Funding Agency:

MOHERI

Collaborative Partners:

Ministry of Health